Hello,
My name is Di and i am so delighted to have found a site in Ireland to share. My daughter was diagnosed 7yrs ago in Crumlin with PHACES and is doing well at the moment , a few post coarctation issues to be discussed later as with her H. OMG i am just bowled over to have stumbled on yis..Congrats on the site an i look very forward to many chats...
I'll await response and take it from there...i hope that any of you who have been going thru' the rigorous tests etc have come out the other side with some favoured answers..
Di.
